Alopecia Experience with Steven Jimenez

Looking At Alopecia From A Different Angle

In Advocate by El Pelo Suelto5 Comments

A Patchy Problem

Considering my father started experiencing male pattern baldness by age 30, I figured eventually I would start losing my hair. However, I didn’t imagine it would be hair loss from alopecia.

As I stared into the mirror I noticed a small patch of hair loss. In denial, I figured it wouldn’t get any larger and everything would be ok. As days went by, the patch got larger. Luckily, it was just one patch. I didn’t know what was happening. Was I balding? Was my hair thinning?

I didn’t know where to turn, and I was unprepared for what was about to happen.

Steven Jimenez looking in the mirror noticing a patch of hair loss from alopecia

Before The Patch

My name is Steven Jimenez, and I started growing out my hair in 2014. At the time my job didn’t care how messy my hair got. I had also moved out of my parent’s home, so I didn’t have to deal with my family’s disapproval.

Growing long hair has been a beautiful and challenging experience. Through this, I learned a lot about myself and even felt closer to my roots.

Initially, I experienced difficulty in finding content for guys growing their hair. After finding The Longhairs and joining the community, I was compelled to document my “Road To Long Hair”.

Soon I wanted to share more and highlight unique experiences from other longhairs. With encouragement from El Rubio and El Moreno, I established “Beyond The Locks” on The Longhairs blog, a series featuring men from different cultural backgrounds and perspectives.

You can read about Alejandro Carillo and his connection to the universe, how Sergio Valencia’s long hair made him a target for military soldiers, and how a barbershop gone missing led Maurice Cherry to grow his hair out.

Head shot of Steven Jimenez, "El Pelo Suelto"

Learning More

Back to present day, I started to feel insecure about this patch of hair loss. It started from the top of my hairline in the shape of a circle. Wearing a hat could easily cover the patch, but I enjoyed having my hair tied back during the day.

To help stimulate regrowth, I started massaging coconut and rosemary oil onto my scalp, but this didn’t seem to help the hair loss. While there isn’t enough research to prove these promote hair growth, they sure do seem to keep your scalp healthy.

My guess was that I was losing hair from exposure to COVID-19. At the time, people were reporting hair loss after being infected.

I also reached out to my father to better understand when he started to lose his hair, but his experience didn’t line up with mine. I started to share my story with others, and eventually went to see a dermatologist.

Experiencing Hair Loss From Alopecia

I didn’t find out I had alopecia until about two months after I noticed the patch forming. In late August I saw a dermatologist, who diagnosed me with acute alopecia, an auto-immune disease where your immune system begins to attack hair cells. While stress and a poor diet may be contributing factors to alopecia, the true causes are unknown.

At least I finally knew what I was dealing with, and knowing my diagnosis I had something to research. What stuck with me was that nothing could be done. There was a possibility that more patches would appear, or that my patch would never regrow.

The only thing the dermatologist suggested was injecting a steroid every month to stimulate hair regrowth, so I gave it a try for the next five or six months. Hair follicles started to appear at the end of the first month. However, there seemed to be some dead areas, where the follicles struggled to sprout.

Eventually, I did see about 80%-90% regrowth. I could have continued the treatment until the patch was fully gone, but getting injections on the scalp was uncomfortable. On the fifth visit, I took my last injections and allowed the rest of my hair to grow on its own.

Steven grimacing at a patch of hair loss from alopecia Close-up of a circular patch of hair loss from alopecia.

You Are Not Alone

Around month three, I called a family friend who experienced hair loss from alopecia as a young teenager. Growing up, Chris would have flare-ups where he would start to lose hair on his head, and more severe flare-ups where he would have no hair on his head or his face.

For Chris, going to school and trying to be a normal kid was a challenge. Others didn’t understand and would make fun of him. I never considered asking how he was doing or feeling, not realizing what he was going through. I just saw him as Chris, our family friend from down the block.

Hearing his full story reminded me to be grateful, and the importance of fully listening to others. Today, Chris is studying to be a physical therapist. He has mitigated hair loss from alopecia with a healthier diet that reduces inflammation.

After hearing Chris’s story and reflecting on my own feelings, I felt that donating my hair was what I wanted to do. I learned what it meant to experience hair loss from alopecia, how it affects people of all ages, and I wanted to help children who can’t grow hair.

Steven prepping his hair for donation to Children With Hair Loss. 5 long ponytails!

More Than A Cut

In 2021 I donated my hair to Children With Hair Loss. The day before my thirtieth birthday, my girlfriend Michelle helped me tie my hair into five ponytails. Five snips later I had my donation ready to go, measuring 12 inches. I did save a few of my locks for sentimental reasons.

If you look closely, you can still tell where the patch was. The hair where the patch was is now growing, it just doesn’t have the same length as the other hairs around it. So far I haven't found another patch on my scalp, but it’s not certain whether I’ll continue to experience hair loss from alopecia. If another patch appears, at least I’ll know what’s happening and I’ll be prepared.

Post haircut holding strands of hair

All in all, cutting my hair didn't change who I was, and it didn’t take anything away from me. Instead, donating my hair empowered me, and taught me to appreciate the privileges I enjoy today. My hair was used for a better purpose, and that makes me happy. If the time and circumstances come for you, I highly recommend donating your long locks to those in need.

It has been four months since I cut my hair, and I have thought about growing it out again. We’ll see what the future brings, but whatever happens…once a longhair, always a longhair.

Steven holding his certificate from Children With Hair Loss
El Pelo Suelto author photo, looking good bro,

El Pelo Suelto

Steven “El Pelo Suelto” Jimenez is a latino software engineer from Long Island, NY. You can find him racing his road bike, eating delicious food or getting lost in music. Read his longhair story, Road to Long Hair.

Have you had experience with hair loss from alopecia?

Comments

  1. Excellent article! I’m getting ready to make my 10th hair donation since 2001. It means so much to others and I’m grateful to make the sacrifice. Peace!

  2. Thanks for sharing your story. You have a great attitude. I’m sure you will manage this issue and not let it get to you. My biggest takeaway from your story is when you said you cannot let physical things like your hair define who you are. I recently found out about alopecia when I discovered that a musician I follow has had an extreme case of alopecia since she was a child. As an adult in her twenties, I believe she has no hair at all anywhere on her body. For years she has performed and gone in public wearing wigs, but she recently has started making some of her videos a la nautrale. If anyone would like to check her out or support her, her name is Molly Tuttle, and she is an amazing musician and a bad ass flat picking guitarist!

    1. Yo David, thanks for the comment and telling us about Molly! Link up one of her videos in the comments next time. Thanks again man!

  3. there are much and more cases for a bald spot or an alopecia
    the male pattern: no reverse without an hormonal treatment ( with side effects, unpotency first)
    traction alopecia: on front or temples, but a regrowth as you cannot tie the regrowing hair…
    hairloss from sticky hair: usually follows a inadequate shampoo…
    mineral or vitamins deficiency ( the most known is the pregnancy alopecia due a insufficient biotin level) for the men usually C or D vitamin deficiency ( 1st prescription is a multivitamin and a biology )
    and much medical cases; you must see at the dermatologist’s ( much mycosis)

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